tag:blogger.com,1999:blog-6447892187739221541.post8459571757045466768..comments2023-07-29T03:49:14.809-04:00Comments on Apraxia-KIDS - Every Child Deserves a Voice: Every Child Deserves A VoiceApraxia-KIDShttp://www.blogger.com/profile/17484018071197731716noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-6447892187739221541.post-87929004929885732132010-02-18T07:17:16.711-05:002010-02-18T07:17:16.711-05:00Thank You so much for your touching article which ...Thank You so much for your touching article which describes everything we were and are going through.<br />My now 5,5 year old son had seen speech therapists starting at age 2 with no progress at all. A year ago I started searching the internet, after being frustrated and sad to watch Ruben wanting to speak out but just not being able to.<br />I found a mother describing her son`s attempts to speak exactly as my son did. Her son had been diagnosed with Childhood Apraxia of Speech.I printed out every information I could find (which was so little) and showed it to his therapist.After a week he gave me back all my printouts and told me ``Interesting, but I treat him the right way.``I felt so stupid. <br />Finally he was diagnosed at age five and we found a wonderful therapist, who has helped us so much. Ruben is now able to say his own name, speak little sentences and we feel, he is on his way to be a happier child.<br />CASANA is a treat for every family with an apraxic child. We live in Germany, where CAS is not an issue at all.Ulla Sievertsennoreply@blogger.comtag:blogger.com,1999:blog-6447892187739221541.post-22700332152925932652010-02-17T18:44:04.791-05:002010-02-17T18:44:04.791-05:00I was so pleased to see an article about apraxia. ...I was so pleased to see an article about apraxia. My son, now 14, was diagnosed when he was 6 not by his speech therapist, but by the occupational therapist. To read what all of this entails now that he's been through this is so interesting. All he could say when he was 3 was "tee-tee" and "dee-dee". Those were his words for everything. Once we started speech at the age of 3, he started progressing. We finished speeech therapy by age 8, and he could speak well except for his "r" sound. Most of the time now he does great. Thanks again for this great article!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6447892187739221541.post-49517793004797248022010-02-17T17:52:48.230-05:002010-02-17T17:52:48.230-05:00What a well written and touching article. Why do t...What a well written and touching article. Why do tears still come to my eyes when I read such stories. My son is almost 12 still; I will never forget how hard it was when he couldn't talk. I was in a store the other day, the mother said to her crying child "use your words, I can't understand you". I had to walk away as I fought back tears remembering how hard it was when we couldn't understand my son and he was frustrated to the point of tears.Barbara Varnernoreply@blogger.comtag:blogger.com,1999:blog-6447892187739221541.post-64849207154229277162010-02-17T14:39:06.906-05:002010-02-17T14:39:06.906-05:00Megan, I was so touched by your article. I also ha...Megan, I was so touched by your article. I also have twins, fraternal though. I spent the first 3 years of their lives trying to understand Tevyn, I could get about 50% (thank goodness I taught him some basic sign language so that he could give me the basics). I didn't understand why Jasyn could talk "normally" and he couldn't. After a while Tevyn shut down and pretty much stopped talking because we would have to ask him over and over again to repeat what he said. You could see the frustration on his face because he didn't understand why we couldn't understand him! Finally we took him to a speech therapist and he was diagnosed with CAS. I had never heard of such a thing and was so frightened for him. We were dealt another blow when we found out that our state run medical card wouldn't cover his much needed therapy without a "medical diagnosis" as the cause. So after many other doctor visits and hearing tests, nothing. We would have to wait to see if he could get treatment when he started school. CASANA has been a wonderful resource for us to help Tevyn now, along with the advice given to us by the speech therapist we have worked really hard with him and he has made wonderful improvements. It makes me feel better to know we are not alone and there is hope for Tevyn to be able to properly express himself with words.Holly M Hillnoreply@blogger.comtag:blogger.com,1999:blog-6447892187739221541.post-35396159803264254982010-01-28T16:05:12.760-05:002010-01-28T16:05:12.760-05:00well written and I agree, this is a hard journey.....well written and I agree, this is a hard journey..we've been doing it for 2 years and I jsut got out of an IEP meeting today battling with the SLP who just doesn't "get it"-clueless...but I shall continue my fight. Articles and testimonies keep giving me hope :)kate bluehttps://www.blogger.com/profile/02456289047647548081noreply@blogger.comtag:blogger.com,1999:blog-6447892187739221541.post-36607923278179262872010-01-28T15:49:47.617-05:002010-01-28T15:49:47.617-05:00I understand. It is something that most people do...I understand. It is something that most people do not get nor, even care to understand. I have stopped trying to let people "in" on it. My girl knows I have her back. I don't need to try and make someone else get it, they won't. My confidence in her has helped her soar. Does she sound normal, no. I have learned to stop asking what she will sound like when she is an adult. Once I got over that, I was able to just let it go and be her proud mamma that loves her no matter what. Best wishes.Tamihttps://www.blogger.com/profile/01565309198736957429noreply@blogger.comtag:blogger.com,1999:blog-6447892187739221541.post-37900623991975979082010-01-28T12:18:38.273-05:002010-01-28T12:18:38.273-05:00Thank you for a well written article. You put muc...Thank you for a well written article. You put much of my thoughts on paper.Annette W.https://www.blogger.com/profile/02498639468291720406noreply@blogger.com